Any loss or abnormality of anatomical structure or function.
Disability:
It refers to functional impairment due to symptoms of a disease. It is a restriction in the ability to perform an activity in the manner or within the range considered normal for a human being
Handicap:
It refers to the conditions faced by a person with a disability in fulfilling traditional roles depending on sex, age, social and cultural factors. Handicap is a function of the relationshipS between disabled persons and their environment.
It occurs when the person encounters cultural, physical, and social barriers that stop their access to the various structure of society available to other citizens. Accordingly, a handicap is the loss or limitation of opportunities to participate in community life on an equal level with others.
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A baby may be born with handicaps or acquire it later in life due to any of the following reasons:
Pre conceptual factors
Genetic and chromosomal factors
Diseases that are transmitted genetically may be autosomal dominant, autosomal recessive, or sex-linked. An alteration in genes and chromosomes due to any defect or mutation can initiate the process of malformation that may lead to physical or mental disability.
Lack of oxygen supply to the fetal brain during gestation due to placental factors may lead to severe mental defects in the fetus. Prolonged and difficult labor may worsen the condition of the neonate.
Birth trauma
Prolonged labor and difficult instrumental delivery may cause cerebral damage. In case of breach delivery, hyperextension of the head or stretching of the vertebral column may give rise to spinal cord injury that may cause physical impairments in the baby.
Infections like meningitis, encephalitis, poliomyelitis, etc., result in neurological and physical defects and disability.
Trauma
Cerebral contusion, cerebral hemorrhage, and head injuries after road traffic accidents can lead to neurological deficits in the person. Road traffic accidents may also lead to crushing injuries of limbs, leaving the person crippled and handicapped.
Nutritional deficiencies
Nutritional deficiencies like Vitamin A deficiency and Vitamin D deficiency can lead to night blindness, skeletal deformities, etc.
Maternal factors
Maternal factors leading to handicaps in babies are:
Rh incompatibility
Multiple pregnancies
Medications given to the mother during the first trimester of pregnancy
Standard features which may help identify disabilities are:
Deviation from normal behavior is the first indicator of physical, mental, or neurological impairment
Absence of normal reflexes
Feeding problems
Lack of movements or uncoordinated movements
Abnormal posture of the newborn.
Problems Faced by Families of Exceptional Children
Shock and denial
Parents feel shocked at the birth of an exceptional child. They use denial as a defense mechanism and are not ready to accept that their child is born with an abnormality.
Adjustment
After a long phase of stress, parents try to adjust to the child’s condition.
Reintegration of the family occurs, and parents then accept the child as he is.
Freezing out
The child is put out of the family, in some institution for his/her treatment and guidance.
Physical Handicaps
Blind
Deaf
The reaction of Child and Parents to Physical Handicaps
Reaction of Young Children
They consider it as a punishment for being wrong.
Show resentment towards parents, siblings, or teachers.
They may deny the disability.
They may have behavior problems like temper tantrums, stammering, sleep problems, etc.
Depression
Reaction of Older Children
They may use their disability to influence family, friends, and physicians.
Feeling of inferiority and depression.
School failure because handicap is taking as an excuse for failure.
Rebellious independence.
Negativism
Reaction of Adolescents
Fear of losing control of body functioning.
Shame for not being like everyone else.
Personality problems like becoming either aggressive or immature.
Adjustment problems.
Reaction of Parents
They deny the incurability of handicaps.
Guilt feeling.
Show anger towards physicians and God.
Have an overprotective or overindulgent attitude.
May neglect, exploit or abuse the child.
Maybe over-anxious.
Management
Management aims to minimize the severity of handicaps and their effect upon the child and his family. Following strategies may be helpful for the child:
Physically disabled children want to be expected and be seen as usual as possible. Focus on what they can do at all times.
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